Lymphedema Q & A

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Below are a few Questions & Answers on Lymphedema responded to by our Lymphedema Therapist, Erin J. Dominick. Erin uses her 17-years of experience in this profession to answer your questions and share some "must know insights" with you. Be sure to use the link below to ask your own questions. 
What is a typical lymphedema therapy session like?A typical session begins with an evaluation of your medical history and the cause of your lymphedema. The therapist will educate you about the symptoms and causes, as well as prevention and self-care strategies. We will discuss the components of complete decongestive therapy, which are crucial for effective management. These components include exercise, skin care, manual lymphatic drainage (often referred to as massage or using a pneumatic pump), and compression. During decompression treatment, the therapist will use either short stretch bandages or a removable Velcro garment. Long-term management often involves a stocking or sleeve.
Does it hurt?No, treatment should not cause pain. Exercises are tailored to your tolerance level and typically involve specific movements to help drain lymph fluid from the affected area and direct it toward other lymph nodes. Lymphedema therapy and the use of a pneumatic pump should be relaxing. Compression should also be comfortable, and you should experience less pain as you progress in your rehabilitation.
Can I move with the wraps on?Initially, for severe cases, short stretch bandages may be used, which can somewhat restrict movement but are generally used for a short period. During the decongestive phase, Velcro garments offer more flexibility and generally allow for easier movement. Most people report no difficulty, even with a full leg wrap, and can continue using their regular tennis shoes. Long-term garments, such as stockings or sleeves, are designed to be as unobtrusive as a sock and should not interfere with movement.
How often do I need to come in?The frequency of visits depends on the individual case but typically involves sessions twice a week during the decongestion phase. Once we are ready to fit a long-term garment, appointments may be reduced to once a week if you prefer to focus solely on exercise and lymphatic drainage until you are comfortable with all aspects of self-care.
Do you encourage breathing exercises?Yes, one recommended exercise is pursed-lip or belly breathing. This technique helps move fluid into your deeper lymphatic system, which is then processed through your kidneys or bowel (usually the kidneys). It is common for patients to notice an increase in bathroom visits as a result.Do I feel better immediately?
Many people start to feel better within 1-2 weeks as fluid levels decrease. Movement often becomes easier almost immediately due to reduced weight. However, the timeline can vary widely depending on the severity of the condition and your personal goals. Some patients may be discharged from therapy in as little as 2 weeks if the lymphedema is caught early, while others may require 5-6 months of treatment.
Any additional advice for your clients?Lymphedema can be overwhelming due to its complexity. It’s important to address not only the causes and treatments but also the potential side effects of untreated lymphedema. Without proper treatment, fluid accumulation can lead to skin complications such as cellulitis, which may progress to sepsis. Additionally, untreated lymphedema can result in skin thickening, discoloration, reduced mobility, weight gain, and a decrease in overall quality of life.
Thank you to Melanie Balliet, MOTR, CLT. for her assistance and input on these questions. 

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Erin J. Dominick

 Erin's 17-year healthcare journey in occupational therapy reflects an unwavering commitment to well-being and a profound understanding of the human body. Over the years, she has specialized in lymphedema, and oncology therapy blending expertise, empathy, and relentless pursuit of excellence. Erin's patient-centric philosophy recognizes the interconnectedness of healing and movement. Tailoring non-invasive therapy to individual needs earns her trust from clients and colleagues alike.

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Melanie Balliet  

Melanie has been working in occupational therapy since 2010. She is a Certified Lymphedema Therapist with experience in outpatient hand therapy, inpatient rehabilitation, acute care, and stroke and spinal cord injuries. Melanie believes there is a gap in lymphedema rehab in terms of prevention. She aims to educate people regarding how to manage lymphedema and prevent debility (weakness).